Addy’s CF Awareness Video

The Great Strides walk is right around the corner!  Saturday, May 18, 2013 to be exact.  This will be our 2nd year participating in this UH-MAZING fundraising event.  We had an absolute blast last year walking with friends and family.  There is live music, free food, games, and the best group of people you could ever want to be around.  We urge everyone to join our team and help us raise money in honor of our daughter Adalyn.  If you can’t make it to the walk, please consider donating and helping us reach our goal of $10k.  This year, Kayla and I decided to make a little video showing how CF effects our family.  I hope it gives a little insight as to what Adalyn has to go through living with this disease.  The CF Foundation has made leaps and bounds when it comes to finding new medicines and treatments.  The FDA approved drug Kalydeco has opened the door to new research and brought us one step closer to a cure.  It’s definitely exciting times in the CF community!