The First Dose

Sep 9, 2017
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We received a VERY special package today and I don’t think the UPS driver appreciated just how precious a package he was delivering.  🙂  We are beyond thrilled to announce that tonight Adalyn will be taking her first dose of KALYDECO.  So what exactly is KALYDECO?  It’s a prescription medicine that “…helps the ‘gates’ open more often, allowing more chloride ions to move into and out of the cells. The movement of chloride ions may help keep a balance of salt and water in the lungs.”  Patients who take KALYDECO typically see a substantial increase in lung function, less coughing, less mucus, less trouble breathing, and an increase in weight.  Can you say miracle drug?!  We’re so very thankful to all of our friends and family who have donated to the CF Foundation during our fundraising efforts.  Your donations drive much of the research behind the development of drugs like this.  We also want to send a big SHOUT OUT to our friends at the CF Foundation for all their efforts in this battle.  With fine folks like that in our corner, I’m certain a cure is in Adalyn’s future.


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